1. moody's Avatar
    I need to clarify my daughter did NOT have cancer!! They were able to rule that out really quick.

    It happened while I was still going through my own treatments.

    Ended up she had POTS but her symptoms were not "text book" so it was hard to diagnose.

    However, her case was so bad that it's now in science books and being taught in medical schools all over the country.
    10-17-13 07:00 AM
  2. moody's Avatar
    I don't have BBM right now but if BBRY gets out soon I definitely will add you.
    Thanks for your prayers. I'm standing out on the porch right now watching it rain...feels like it's going to be a long day.


    Sent from my iPhone 5
    Oh I see your iPhone. Well that's ok, you found us here in BlackBerry land!!

    It's going to be a long day. I wish I had the perfect thing to say to make you feel better.

    Whether you have faith or don't Romans 8:28 "We know ALL things work together for good for those who Love God."

    This will work into some good.

    I'll be checking here a lot today for updates!!
    john_v likes this.
    10-17-13 07:04 AM
  3. kbz1960's Avatar
    My BIL just found out he has lung cancer. The good thing is its small and they found it early.
    moody, jaydee5799 and dbiv5445 like this.
    10-17-13 07:13 AM
  4. hamsterwheel's Avatar
    Tomorrow we have to take my ten year old to a tumor specialist. A couple weeks ago he broke his arm, and an MRI revealed what they are calling for now a "bone tumor".

    Needless to say it's been a rough couple of weeks waiting for this appointment as they won't tell us anything.

    Interesting how something like this changes your perspective. Last week I was at Five Below picking up some things, and at the register the girl asked if I wanted to donate to their St Jude's fundraising drive. Reflexively I said no, as money is tight. In that split second I looked down at the card she was holding out and the kid on it looked the same age as my son, and his diagnosis said "bone tumor". Needless to say I made a donation that night.

    You never want to see the word tumor, but when it's your own kid, well, it's so much harder.


    Sent from my iPhone 5
    So sorry, John. Always harder when it happens to a child. My prayers and hugs for you and your family. Stay strong, he needs you more now than ever.
    dbiv5445 and john_v like this.
    10-17-13 07:30 AM
  5. hamsterwheel's Avatar
    My BIL just found out he has lung cancer. The good thing is its small and they found it early.
    So sorry, Z, it's difficult I know. Hugs to you and your family. Very good that they caught it early.
    10-17-13 07:31 AM
  6. moody's Avatar
    My BIL just found out he has lung cancer. The good thing is its small and they found it early.
    (((((HUG)))))
    dbiv5445 and kbz1960 like this.
    10-17-13 07:53 AM
  7. kbz1960's Avatar
    Thanks. He really hasn't been in good health for some time now but that's another story.
    Undbiter65 and moody like this.
    10-17-13 08:27 AM
  8. jaydee5799's Avatar
    My BIL just found out he has lung cancer. The good thing is its small and they found it early.
    Wow Z...hang in there! Hopefully, the outcome will be good! Prayers go out to you and your BIL.
    kbz1960 likes this.
    10-17-13 04:36 PM
  9. jaydee5799's Avatar
    If you were to start a BBM group I'd like to be apart. I was diagnosed with stage 3C colon cancer at the age of 34. Went through 6 months of chemo and 31 radiation treatments. Thankfully my wife and children were very supportive. Going on 2 years cancer free!!

    Posted via CB10
    Fantastic and praying that things stay that way!!!!
    kbz1960, dbiv5445 and Jamie Wooten like this.
    10-17-13 04:37 PM
  10. jaydee5799's Avatar
    Tomorrow we have to take my ten year old to a tumor specialist. A couple weeks ago he broke his arm, and an MRI revealed what they are calling for now a "bone tumor".

    Needless to say it's been a rough couple of weeks waiting for this appointment as they won't tell us anything.

    Interesting how something like this changes your perspective. Last week I was at Five Below picking up some things, and at the register the girl asked if I wanted to donate to their St Jude's fundraising drive. Reflexively I said no, as money is tight. In that split second I looked down at the card she was holding out and the kid on it looked the same age as my son, and his diagnosis said "bone tumor". Needless to say I made a donation that night.

    You never want to see the word tumor, but when it's your own kid, well, it's so much harder.


    Sent from my iPhone 5
    Be strong! We pray for your son! No family needs to go through this kind of thing. Your family needs your strength.
    moody, kbz1960, dbiv5445 and 1 others like this.
    10-17-13 04:38 PM
  11. moody's Avatar
    I came back hoping for an update from John_V. Maybe he will post one tomorrow.
    jaydee5799 and john_v like this.
    10-17-13 08:45 PM
  12. john_v's Avatar
    I came back hoping for an update from John_V. Maybe he will post one tomorrow.
    Tapatalk just informed me you replied to this thread I swear CrackBerry was my next stop. After emailing various family, updating the CaringBridge page, etc...

    Long story short is we still don't know. The oncologist was very nice; younger guy, has kids of his own, and really connected with us before getting into the nitty gritty. He didn't sugarcoat anything, but gave us best case/worst case scenarios.

    He did some more xrays...it was weird to see the "anamoly" in my sons bone. He basically said that if he was just going off of xrays , he'd be comfortable monitoring it and seeing what happens. However, the MRI gives him pause, as it appears to be a bone tumor on the MRI. So, the only definitive way to know is a biopsy, which is scheduled for a week from monday. So it will be a week of wondering still. Casey did get his cast off today, the break was a very clean break and has healed up nicely.

    Lots of info to process and digest. The words "bone cancer" just weren't in my vocabulary. But as I looked around the cancer center today, and saw so many hurting people; all ages, nationalities...definitely not a discriminatory disease.

    If someone wants continued updates, PM me and I'll direct you to our CaringBridge page. I'll try and remember to post here as we go along, but it will be at least a week before anything new.
    jaydee5799, moody, Anilu7 and 1 others like this.
    10-17-13 09:09 PM
  13. jaydee5799's Avatar
    Tapatalk just informed me you replied to this thread I swear CrackBerry was my next stop. After emailing various family, updating the CaringBridge page, etc...

    Long story short is we still don't know. The oncologist was very nice; younger guy, has kids of his own, and really connected with us before getting into the nitty gritty. He didn't sugarcoat anything, but gave us best case/worst case scenarios.

    He did some more xrays...it was weird to see the "anamoly" in my sons bone. He basically said that if he was just going off of xrays , he'd be comfortable monitoring it and seeing what happens. However, the MRI gives him pause, as it appears to be a bone tumor on the MRI. So, the only definitive way to know is a biopsy, which is scheduled for a week from monday. So it will be a week of wondering still. Casey did get his cast off today, the break was a very clean break and has healed up nicely.

    Lots of info to process and digest. The words "bone cancer" just weren't in my vocabulary. But as I looked around the cancer center today, and saw so many hurting people; all ages, nationalities...definitely not a discriminatory disease.

    If someone wants continued updates, PM me and I'll direct you to our CaringBridge page. I'll try and remember to post here as we go along, but it will be at least a week before anything new.
    Another week of waiting is terrible. But we pray for the best!!!
    kbz1960, dbiv5445 and john_v like this.
    10-18-13 05:36 AM
  14. moody's Avatar
    Tapatalk just informed me you replied to this thread I swear CrackBerry was my next stop. After emailing various family, updating the CaringBridge page, etc...

    Long story short is we still don't know. The oncologist was very nice; younger guy, has kids of his own, and really connected with us before getting into the nitty gritty. He didn't sugarcoat anything, but gave us best case/worst case scenarios.

    He did some more xrays...it was weird to see the "anamoly" in my sons bone. He basically said that if he was just going off of xrays , he'd be comfortable monitoring it and seeing what happens. However, the MRI gives him pause, as it appears to be a bone tumor on the MRI. So, the only definitive way to know is a biopsy, which is scheduled for a week from monday. So it will be a week of wondering still. Casey did get his cast off today, the break was a very clean break and has healed up nicely.

    Lots of info to process and digest. The words "bone cancer" just weren't in my vocabulary. But as I looked around the cancer center today, and saw so many hurting people; all ages, nationalities...definitely not a discriminatory disease.

    If someone wants continued updates, PM me and I'll direct you to our CaringBridge page. I'll try and remember to post here as we go along, but it will be at least a week before anything new.
    John, first my prayers still continue for you and your family. Second, thanks for taking the time to come here and update us!!

    Third, let me tell you my story, though I know everyone's IS different.

    I was diagnosed 2/1/2008 with breast cancer. After 2 surgeries and 22 chemo treatments I went into remission 5/2009.

    Last November an MRI showed a tumor on my spine. The radiology report was very, very detailed. It gave an exact location, size, and characteristics (i.e. Blood supply and metabolically active). His last comments were: "evidence of metastatic breast cancer, recommend PET-CT to confirm localization". Other words, my cancer was back and I needed the "big daddy" scan to see if it was localized or had spread further.

    It took me a week just to process it all. Long story short I had the PET-CT scan and it was NEGATIVE!!! In fact, the guy doing the scan said there was NO spot even on my spine!!

    Do I think the first radiologist was wrong? Well of course I suppose that's possible, but he should had lots of details.

    I believe in this case it was the power of prayer.

    One thing I DO know is I'm still in remission.

    My point is the MRI can be wrong but even if it's right, you're doing the best thing. Seek medical attention and prayer!!!

    Posted via CB10
    10-18-13 06:39 AM
  15. julieb9's Avatar
    Cancer definitely does suck. Prayers to all!
    moody, hamsterwheel and dbiv5445 like this.
    10-18-13 02:09 PM
  16. john_v's Avatar
    Crying tears of joy right now. Surgeon just came in and the preliminary diagnosis from the biopsy is a benign fibrous dysplasia, which he will just monitor every six months for a couple of years.

    Can't begin to describe the wave of relief when the first words out of his mouth were "it's a good day"


    Sent from my iPhone 5
    10-28-13 09:48 AM
  17. Undbiter65's Avatar
    Crying tears of joy right now. Surgeon just came in and the preliminary diagnosis from the biopsy is a benign fibrous dysplasia, which he will just monitor every six months for a couple of years.

    Can't begin to describe the wave of relief when the first words out of his mouth were "it's a good day"


    Sent from my iPhone 5
    Ah man! That's great news! We're all happy for you John!

    "If you can't soar with the eagles then don't fly with the flock!" (BBM#18)
    john_v and dbiv5445 like this.
    10-28-13 11:15 AM
  18. moody's Avatar
    Crying tears of joy right now. Surgeon just came in and the preliminary diagnosis from the biopsy is a benign fibrous dysplasia, which he will just monitor every six months for a couple of years.

    Can't begin to describe the wave of relief when the first words out of his mouth were "it's a good day"


    Sent from my iPhone 5
    JOHN!!! That's AWESOME!!!! AWESOME news!! Praise GOD for that news!!!

    Wooo Hooo
    john_v and dbiv5445 like this.
    10-28-13 09:07 PM
  19. hamsterwheel's Avatar
    Crying tears of joy right now. Surgeon just came in and the preliminary diagnosis from the biopsy is a benign fibrous dysplasia, which he will just monitor every six months for a couple of years.

    Can't begin to describe the wave of relief when the first words out of his mouth were "it's a good day"


    Sent from my iPhone 5
    Just made my day. Awesome news.
    john_v and dbiv5445 like this.
    10-28-13 09:14 PM
  20. john_v's Avatar
    Heard from the surgeon today, he confirmed the initial diagnosis of benign fibrous dysplasia. Such a relief.

    But I must say, going through this has given me a whole new perspective on what people are going through. It's not that I had a wrong mindset toward cancer patients and their families before, but until you actually travel the road you simply don't understand what it's like.

    And no, we didn't have to go down the entire road. I thank God we didn't have to do chemo or other treatments. But it's helped me to sympathize with what people are going through.


    Sent from my iPhone 5
    Undbiter65 and hamsterwheel like this.
    11-01-13 05:40 PM
  21. Undbiter65's Avatar
    Heard from the surgeon today, he confirmed the initial diagnosis of benign fibrous dysplasia. Such a relief.

    But I must say, going through this has given me a whole new perspective on what people are going through. It's not that I had a wrong mindset toward cancer patients and their families before, but until you actually travel the road you simply don't understand what it's like.

    And no, we didn't have to go down the entire road. I thank God we didn't have to do chemo or other treatments. But it's helped me to sympathize with what people are going through.


    Sent from my iPhone 5
    Yes. The fear is incredible. It paralyzes you. And it steals your sleep. You can't stop thinking about it. You can't help wonder if your loved one will make it. It's hard. And I'm so happy for you John

    "If you can't soar with the eagles then don't fly with the flock!" (BBM#18)
    john_v, hamsterwheel and dbiv5445 like this.
    11-01-13 06:16 PM
  22. moody's Avatar
    Heard from the surgeon today, he confirmed the initial diagnosis of benign fibrous dysplasia. Such a relief.

    But I must say, going through this has given me a whole new perspective on what people are going through. It's not that I had a wrong mindset toward cancer patients and their families before, but until you actually travel the road you simply don't understand what it's like.

    And no, we didn't have to go down the entire road. I thank God we didn't have to do chemo or other treatments. But it's helped me to sympathize with what people are going through.


    Sent from my iPhone 5
    So so true!!

    People w/ cancer or who have had cancer but we're fortunate to avoid chemo can't possibly understand what that aspect is like either.

    And body transforming surgery + chemo was devastating for me. People didn't / couldn't understand why I was so upset over losing my hair. But the two together? Absolutely gives a whole new meaning to humility.

    HOWEVER scared is scared and just the prospect that one may have cancer will forever change them.

    Posted via CB10
    hamsterwheel, john_v and dbiv5445 like this.
    11-01-13 06:26 PM
  23. moody's Avatar
    To add to my last post: when I was going through it, I KNEW I would be fine, I just had to get through it.

    But for 3 of my dear friends, they had to do it just to prolong their lives as much as could be. They all 3 eventually lost the battle.

    Posted via CB10
    hamsterwheel and john_v like this.
    11-01-13 06:29 PM
  24. Bolderholder's Avatar
    Hi there Moody...

    God bless to you and everyone else also. Cancer does suck. Nothing ever made me feel so useless watching a loved one go through a terrible experience and I couldn't do anything about it.

    You're absolutely right, security is never the same. But the uncertainty does serve to remind me to care for her more each day, hold her hand longer, and treat her like it's our first date, even after 24 years of marriage.

    God Bless to all and let's hope all the damn research dollars raised thru campaigns actually leads to a cure for everyone affected.

    It just seems appropriate to start this thread this month.

    I'm a 5 year cancer survivor myself. Yep I was unknowingly initiated into the Pink Ribbon Sorority 2/1/2008.

    Treatments may end but security never returns. Remission is never guaranteed.

    If you are going through treatment, in remission, are a care giver, have a loved one going through cancer or have lost a loved one to this disease, feel free to share your story here.

    And send me a PM if you would like to form a BBM cancer group.

    May God Bless us all!
    hamsterwheel, moody and dbiv5445 like this.
    11-01-13 07:04 PM
  25. moody's Avatar
    Hi there Moody...

    God bless to you and everyone else also. Cancer does suck. Nothing ever made me feel so useless watching a loved one go through a terrible experience and I couldn't do anything about it.

    You're absolutely right, security is never the same. But the uncertainty does serve to remind me to care for her more each day, hold her hand longer, and treat her like it's our first date, even after 24 years of marriage.

    God Bless to all and let's hope all the damn research dollars raised thru campaigns actually leads to a cure for everyone affected.
    Bolderholder, my cancer was so much harder on my husband and mom than it ever was on me.

    They too felt so helpless. They HATED sitting there watching that poison they call chemo going through my veins, know the next 7-10 days were gonna be so rough on me.

    I was the one so sick but my heart hurt for them. Seeing them try so hard to keep my meds coming on time, doing all they could knowing I just had to get through.

    My hat is off and I salute all caregivers!! You guys ROCK!!!

    Posted via CB10
    Bolderholder and dbiv5445 like this.
    11-02-13 06:50 PM
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